Mental Retardation &
Severe Disabilities
  Web Links
  Books
  Journals/Newsletters
American Association on Mental Retardation (AAMR)--The American Association on Mental Retardation is a professional organization that advances the knowledge and skills of individuals in the field of mental retardation and related developmental disabilities through the exchange of information and ideas. The Association strives to enhance the life opportunities of people with mental retardation and their families, and to promote public policies, research, and services which advance individual choices and human rights.  The AAMR publishes three periodicals, The American Journal on Mental Retardation (AJMR), Mental Retardation (MR), and New & Notes.   The AJMR is a scholarly research journal; MR is a practitioner's journal of research, reviews, and option; and News & Notes is the Association's newspaper.  Visit their periodical site to subscribe or view abstracts from the latest issues of their periodicals.  Click on AAMR web site, you can have complete agenda and speakers for the AAMR Consent Workshop, complete descriptions and ordering information on AAMR's newest books, latest abstracts from MR and AJMR, and a complete copy of News & Notes.

RADAR--RADAR is a database that identifies and tracks key disabilities issues and emerging trends at the local state, national, and international levels.  RADAR searches articles in more than 150 newspapers, trade newsletters, and professional journals for trends in the disability field.  Every two weeks, new abstracts summarizing important articles on these issues are delivered to the RADAR network, available to you at the click of a button.  This revolutionary new service, sponsored by AAMR and The Lewin Group under a grant from the Administration on Developmental Disabilities/ACF/HHS, includes article summaries from October 2000 to the present.  Click on RADAR today  to be the first to read about emerging trends.

Bazelon Center for Mental Health Law -- The Judge David L. Bazelon Center for Mental Health Law is a nonprofit legal advocacy organization based in Washington D.C.  The Bazelon Center is one of the leading national legal advocates for people with mental illness and mental retardation.  This site has various links related to Aging issues, Children's issues, Fair Housing issues, Mental Health Care, and so on.  In addition, links of interest of this site provide lots of links related to mental health & disability advocay/information; consumer/survivor organizations; congress and media; state advocacy resources; other advocacy, legal & policy links; and other mental health and disability resources.

Down Syndrome--This site grew out of the Down Syndrome list serve and news group.  The site is "dedicated to providing up-to-date research information, educating the general public about the accomplishments of children and adults with down syndrome. . . ."  information on Down Syndrome, Autism and other disabilities, support groups, and many other internet links. Especially, their links for parent & parent/sibling support, inclusion resources, and frequently asked question are excellent.

The Association for Persons with Severe Disabilities--TASH is an international association working with advocates for disabilities rights worldwide. TASH focuses mostly on individuals with severe disabilities and publishes a journal and newsletter as well as hosting a yearly conference.

United Cerebral Palsy (UCP) -- UCP has been committed to change and progress for person with disabilities.  The national organization and its nationwide network of 150 affiliate partners strive to ensure the inclusion of persons with disabilities in every facet of society.  UCP is the leading source of information on cerebral palsy and a pivotal advocate for the rights of persons with any disability.
Association of Retarded Citizens (ARC)--The ARC is committed to work with families by helping children and adults with disabilities secure the opportunity to choose and realize their goals of where and how they learn, live, work and play.

ARC of NEBRASKA -- The Arc of Nebraska is a statewide association of people with developmental disabilities and their parents, other family members, and interested people.  The Arc of Nebraska is committed to helping and improving the quality of life for all children and adults with developmental disabilities.  The Arc of Nebraska, Inc. is a nonprofit 501 (c) (3)organization, incorporated in the state of Nebraska.

Books

    American Association on Mental Retardation (1992). Mental retardation: Definition, classification, and systems of supports. Washington, D.C.:American Association on Mental Retardation.

    An excellent source on mental retardation!  This book presents a paradigm which focuses on needed supports rather than an IQ-derived level of retardation. It presents a theoretical background of the definition of mental retardation, how to operationalize the three-step process of diagnosis, and uses case studies and forms to ease implementation of the process.
      Bierne-Smith, M., Patton, J. R., Ittenbach, R. (1997). Mental retardation. New York:Macmillan College Publication Co.
    This is the 5th revision of this text book, it was written to provide educators and service providers with up-to-date information on many facets of mental retardation from a life-cycle perspective. A historical perspective presented from key leaders in special education as well as application of the revised AAMR definitions help provide an exceptional text for the reader.
      Drew, C.J., Hardman, M.L., & Logan, D.R. (1996). Mental retardation: A life cycle approach. Englewood Cliffs, NJ:Prentice Hall.
    Intended to provide an introduction into mental retardation through a human development model. Specifically written for upperclass students in social and behavioral sciences.
      Hickson, L., Balckman, L.S., Reis, E.M. (1995). Mental retardation: Foundations of educational programming. Boston: Allyn & Bacon.
    Introduction for students to the nature and needs of individuals with mental retardation from an educational perspective. Based on critical analysis of existing special education approaches representing both cognitive and behavioral orientations to determine the degree to which their effectiveness has been demonstrated.
      McLaughlin, P.J., & Wehman, P. (Eds.) (1996). Mental retardation and developmental disabilities. Austin, TX: Pro-Ed.
    A basic, introductory reference text for students and professionals beginning their careers in or expanding their careers to include developmental disabilities. Includes best practices and a comprehensive view of different disabilities and a range of services necessary to work with persons with such disabilities.
      Smith, J.D. (1995). Pieces of Purgatory: Mental retardation in and out of institutions. Pacific Grove, CA: Brookes/Cole Publishing Co.
    The personal life story of a man with mental retardation, which questions social policy and ethics of attitudes and behavior toward persons with mental retardation.
Journals/Newsletters

American Journal on Mental Retardation, AAMR Publications Center, P.O. Box 25, Annapolic Junction, MD 20701-0025. (301) 604-1340.

Mental Retardation, A Journal of Policy, Practices and Perspectives, AAMR Publications Center, P.O. Box 25, Annapolic Junction, MD 20701-0025. (301) 604-1340.

AAMR News and Notes, AAMR, 444 North Capitol Street, NW, Suite 846, Washington, DC 20001-1512.

University of Nebraska-Lincoln Ellin's Severe Disabilities Page
Direct questions or comments: to Dr. Ellin Siegel esiegel1@unl.edu